A Football-Sized Mass on His Neck: How José Serrano Got Room to Breathe

José Antonio Ramírez Serrano was born in Ciudad Juárez, Mexico, with a golf-ball-sized lump on his neck. The diagnosis was venous lymphangioma — a congenital lymphatic malformation, not a cancer. The cysts and vessels kept growing. By the time he was nine or ten the mass stretched across his neck, left shoulder and chest: roughly a foot long and several inches thick, often compared to a football or a watermelon. It pulled his posture, tired him, limited play, and began to crowd his airway and press toward the chest. Doctors warned that a fall or further expansion could choke him.

The family had no money for the kind of care the lesion required. Missionaries from First Baptist Church of Rio Rancho, near Albuquerque, saw José during a visit to Juárez. U.S. Homeland Security Investigations helped obtain humanitarian visas. In July 2012 the boy and his parents crossed into New Mexico. The church housed them and raised funds. Specialists at the University of New Mexico Children’s Hospital took the case.

Surgery could not be first. The mass was a sponge of cysts and blood vessels wrapped around the neck and shoulder. Pediatric surgeon Dr. Cynthia Reyes and colleagues used medical therapy first, including sildenafil (better known as Viagra), which can shrink some lymphatic malformations in children, along with other measures aimed at reducing fluid and vascularity. Infections delayed the operating date.

On 17 November 2014 a large team — reports range from about 12 surgeons to 25 medical staff — operated for 11 to 16 hours. They had hoped to take more. Heavy bleeding forced them to stop after removing about a quarter to a third of the mass, a piece Reyes compared to half a football. José needed transfusion approaching a full blood-volume replacement. He spent time sedated in intensive care.

What remained did not stay the same size. Scar tissue and continued treatment caused the leftover malformation to shrink. Follow-up in 2015–2016 found him taller, heavier, and describing himself as “a new me.” He still needed periodic visits to Albuquerque to watch for recurrence, physical therapy, and later work on skin and shoulder contour. Gov. Susana Martinez visited him in hospital. The family later returned to Juárez and struggled with travel costs for checkups.

Lymphatic malformations of this scale are uncommon and technically treacherous because they interweave with carotid vessels, nerves and the airway. José’s story is less a single “miracle cut” than a two-year chain: visas, a church, medical shrinking, a long incomplete resection, and slow remodeling afterward. The mass no longer sat on his windpipe like a ball. That was enough to let a boy run.

Sources

  • Associated Press, “Mexican boy has massive tumor removed in US,” November 2014.
  • Reuters, “American surgeons remove massive tumor from Mexican boy,” 18 November 2014.
  • KOAT / Action 7 interviews with Dr. Cynthia Reyes, UNM Children’s Hospital, November 2014.
  • El Paso Times, “Juárez boy continues his journey for treatment,” March 2016.
  • Contemporary reports on sildenafil therapy for pediatric lymphangioma (2013) and First Baptist Church of Rio Rancho’s role.