At just 8 months old, baby Cyrus was diagnosed with Bohring-Opitz syndrome — an incredibly rare genetic condition that affects only a small number of children worldwide.

The news was life-changing for his parents, Brandon and Savannah Putman of Anniston, Alabama. Bohring-Opitz syndrome is a severe disorder that can bring significant medical challenges, including distinctive facial features, developmental delays, feeding difficulties, and other complex health needs.

Yet to Brandon and Savannah, Cyrus is so much more than a diagnosis. He is their little boy with bright eyes, curly hair, and a spirit that lights up every room. In the face of an ultra-rare condition, they continue to focus on the everyday moments of love, connection, and care that make him uniquely theirs.

The family’s journey is still unfolding, with ongoing medical support and the daily strength that only parents of a medically complex child truly understand. Through it all, one truth remains clear: Cyrus is not defined by a rare syndrome. He is defined by the deep, unwavering love of the family who holds him close.

Sources

• Family statements and social media posts shared by Brandon and Savannah Putman regarding Cyrus’s diagnosis (2026)