Kinley, from South Jordan, Utah, has been living with a rare venous malformation since birth.
Kinley, from South Jordan, Utah, has been living with a rare venous malformation since birth.
According to her family, the condition affects her neck, airway, mouth, tongue, and major blood vessels in her chest. Over the years, she has undergone **22 surgeries and medical procedures** as part of her treatment.
Throughout her journey, Kinley has also faced complications including blood clots, sleep apnea, airway challenges, and other medical issues. Despite these obstacles, her family says she continues to enjoy dancing, creating art, and making the most of every day.
Earlier this year, Kinley’s family learned about a specialized treatment for complex venous malformations that is currently available through a medical team in Italy. Before traveling there, they plan to meet with a specialist in New York to prepare for the next stage of her care.
Her family is hopeful that this treatment will provide new opportunities to improve Kinley’s quality of life and help her spend more time enjoying childhood with family and friends.
They remain grateful for the support they have received and continue to look ahead with hope as they prepare for the journey.
**Disclaimer:** This post is shared for informational, awareness, and family-support purposes. Medical details are based on information shared by Kinley’s family and should not be interpreted as independent medical findings or medical advice.
